To my followers, my readers, my G+ family, my Endo sisters.. Last I wrote I was getting ready to do the Interstim trial for bladder issues due to IC. Sad to say, I had the surgery done, then I was allergic to the trial leads and had a very bad experience. Does it work?
With a new school year comes new friends, new teachers, new classes, new people to “explain” my daughter’s situation to. My daughter, beautifully, creatively, intelligent young lady, now in 8th grade. Each year we have a “Meet and Greet” with the teachers for both kids. I always start off with “This is Cyan, she
First, what is an “endo flare”? Well, it is when our pain from endometriosis hits a high. Usually do to stress, ovulation (pms), physically over doing something, or another health issue that inflames our bodies. So, I thought, since I’m in the beginning of a flare, I could write about how to handle it. I
Many of you already know, yesterday was my appointment with my Endometriosis Dr. I had my yearly pelvic exam, and was there to discuss a few things. Discussion: Ovarian pain, right side only, lasting longer than normal. Possibility of removing last ovary remaining (Lily) Needing a official diagnosis of Pelvic Floor Dysfunction, to give to
The Pain Is Real You want me to be happy, and attend your party. But the never-ending pain is real. You asked me to go shopping with you, at the mall. But, I was awake all night, the pain is real. I wanted to catch a movie with you. But, it hurts to sit
Tonight is a rather empty feeling night for me. One of those that I’m digging deep to find my smile. Rest assure I will find it, just takes time. I have told very few exactly what is happening over the last three weeks. I will, in this blog, explain what is happening. As you know
The ability to laugh at any situation, to find a smile, regardless how deep down you have to go to find a reason to smile, is what keeps you active and the author of your own story. I’m often asked, “Why do you find humor in everything in life?” or to those that know me
Today is the last day of endometriosis awareness month. BUT, endometriosis awareness is not just a month for me, it is every month, every week, every day. Thank you to those that supported me by sharing yellow for endo pictures, who visited my blog and took the time to see exactly what this disease is all about.
If you are a Spoonie (see The Spoon Theory) then you are well aware of those days when you just want to do something, but no idea what due to limitations. Well, I have found that something as of late. It started on Pintrest, searching for easy DIY projects. Something that does not have to be
My Nephew Was Murdered I am not sure I’ve ever spoken all that in one sentence out loud, before. My 1 year 10 day old nephew was murdered. Taken from this life, on purpose. Not in a car accident, not by a mistake, but murdered. Murder, that is two loved ones in my life that